In my first years of Narcolepsy I was a teenager who fell asleep all the time (surprise). In school, at the dinner table, while talking to a friend, you name it. 

This was such a horrible time, because even when I got the diagnosis and some medication, I was still falling asleep – and NO ONE understood me. 

Luckily, my mom convinced me to try this diet she had read about online. A protocol for a strict low carb diet, that we followed in detail. Well, tbh I didn’t have much choice, my mom made the decision for me (I can tell you I wasn’t too excited to stop eating bread, candy and pasta). But it didn’t take long before I changed my mind. The effect was so obvious I couldn’t deny it. 

After being on the diet for 1 week, we were exploring a city. And after walking around a whole day, for 8 hours, we realised that I had been awake and alert for the whole time. 8 hours!! Walking around cities used to be one of the worst things before. 

So I understood I had to keep this diet going. I could not NOT do it. It made me feel alive again. In control of my condition. Not cured, but much much better. 

So one year later, I decided to stop medicating. The diet + coffee had the same effect as the medication (or better) and it actually felt like a much better option for me, long term. It was a healthy & natural way of managing the daytime sleepiness and it made me feel empowered and in control of my situation.